Today had lots to tears to accompany it. The organism that they found in Olive's CSF fluid is Staphylococcus Aureus...which means she has meningitis. This was the first news we heard upon arriving at the hospital this morning. We also found out that one of the people we thought was a resident is actually on staff here which has made us feel better.
Throughout the day Olive has had episodes of Apnea where she stops breathing and her heart rate drops. With the help of a little oxygen and patting her on the back, scratching the bottom or her feet, or rubbing her little cheeks her numbers eventually climb back up. The doctors are contributing this to her infection and say that hopefully by tomorrow night or Tuesday morning the clinical signs will start getting better once she has a few days of antibiotics in her system.
The problem with all of this is that we need her to be stable to take her on the flight planned for Tuesday morning at 11:00 am. Everything is set up and in place...except for Olive's current health status.
Tomorrow morning the doctor who would be traveling with Olive if we go to the States, is coming to the hospital to take a look at her and her labs to decide if she is fit to fly or not. They will be doing a lumbar puncture on Olive in the morning to assess the level of her current infection and also to remove 5 ml of CSF to help decrease her intracranial pressure. According to one neonatologist we have been talking with in the States, if they are able to control her infection by Tuesday and her vital signs stabilize she should be able to still make this flight.
Another issue that we haven't yet been able to discuss with her neurosurgeon is how they are going to go about reducing her intracranial pressure now that she has an infection...(insert a deep tired sigh here).
We are crawling into bed tonight feeling emotionally drained and down in the dumps. I'm not sure what you should be praying for at this point...maybe for the antibiotics to destroy all of the bacteria in her system so that her clinical symptoms improve by tomorrow? Or maybe pray that if this doesn't happen we will have the strength to embrace the next step if that means we need to stay here longer.
Love,
Lynette
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5 comments:
What an overwhleming blow! You must feel like the rug has been pulled out from underneath you! I am so, so, sorry! You are mentally, physically and emotionally exhausted!
If you can, make yourself focus on all that God has done so far. God has answered many specific prayers, and He has given you peace when you've needed it.
At times God's truth (that God is good and in control) and our experience (this isn't fair) don't mesh. When you're experience and God's truth doesn't seem to match, pour your heart out to God. I'm sure you've already done this! God will meet your needs and is always available. Take your hurt and confusion to Him. Step into His presence, and ask for his perspective, and strength.
I am praying for Olive, and for you. I am praying for you to expereince/feel God leading and guiding you.
I hope this doesn't sound 'preachy'. This difficulty hurts and it isn't easy. I also know God is with you.
Psalm 73: vs 23-24 'Yet I am always with you; you hold me by my right hand, You guilde me with your counsel...
Your honesty in your feelings is so refreshing. God is using you to teach us much in this time of trial. Lynette I will be praying for you from as one mom to another. That your exhaustion would be restored with energy and that even with this blow you would feel your faithfulness rise in a way that is beyond understanding. Sending hugs and cuddles to miss Olive in this time!
Praying for you and little Olive that she will have good test results and you can fly to the States as planned. We serve a mighty God and we are trusting Him in this new situation. ((((HUGS))))
Praying SOOO hard for you all. Rememeber God gives you no more than you can handle....he will be there for you as parents and for Olive. Try to keep your chin up...it has to be soooo hard .Wish I was there to give you hugs...so sorry to hear all this but she will get better...she will...we MUST stay positive!!! God Bless You All....Karen P.S. Tommorow is a NEW day with a NEW beginning!!
We are so sorry for Olive's struggles....what an amazing fighter God has brought into the world. Lord, we pray for Olive's healing, for strength to battle infection, and for strength to endure the flight "home". Cuddle her close to your heart, Lord, especially when our human hands aren't there to do it....Sing her your sweet lullabies, whether by one or one thousand angels...whisper into her ear how much she is loved...and give her parents peace.
Joel and Shauna Senti (Koolhaas)
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