Ultrasound and CT Scan Results...

Dear friends and family,

We had a very intense day today and are feeling pretty drained. This morning Olive had an ultrasound of her brain to assess if there was any further bleeding, or an increase in fluid around the brain. The results showed that there has been no additional bleeding. However, the area with the bleeding has not absorbed back into the circulation of the brain causing an obstruction in the cerebral spinal fluid. This increase in fluid around the brain (hydrocephalus) is causing some pressure on the brain, as well as an increase in her head circumference. After the ultrasound this morning the brain surgeon decided to send Olive for a CT Scan of the brain to see more clearly what is going on. The CT scan confirmed what they had seen in the ultrasound.

The doctor told us that the treatment will be to place a temporary shunt/drain into her head to remove some of this fluid. He says there is a small chance that it could resolve on its own if her body would absorb the blood from the hemorrhage, but he suggested getting arrangements in place for surgery in case that becomes the only option. The good news is that because her head is so soft, and her fontanels haven't yet closed it will allow her head circumference to increase and make room for this fluid...and the brain surgeon said it is not an emergency surgery, but suggested within the next week or so we would take action.

Currently Olive has an infection in her blood, though she received antibiotics for it. We will wait to see the results of her CBC (Complete Blood Count) tomorrow to see if her WBC (white blood cell) count has gone down at all, which would show a decrease in infection in her body. Worries from the doctor about giving her this shunt are that she has such weak immune system, she is only 1.295 kg, and fears of using anesthesia for a pre-term 28 week old baby. There is of course an increase in the risk of infection with any surgery.

Good news for the day...her bilirubin levels have dropped and she is no longer under photo-therapy. She continues to do well on the colostrum and day by day they have been increasing her intake. Today she was only receiving 21-25% oxygen. Her heart rate and blood oxygen level remained stable all day. They have also changed the ventilator settings to make her use her little lungs more and she is adjusting well and making good progress.

Tomorrow we will be writing up reports of all of her treatments, diagnosis, and test results and making phone calls to doctors here in Thailand, as well as neonatologists and brain surgeons we have been recommended to contact by our friends and families in the States. We will then be trying to figure out where the best place for her treatment will be, and finding a neurosurgeon who has had experience placing shunts in pre-term babies...as well as finding anesthesiologists who have experience with pre-term babies. Pray for wisdom as we make these decisions.

We have also been trying to sort out lots of details with our insurance, so please pray for this as well.

We are so thankful to have my mom and dad here during this time and for all of the love and support they are giving us. Our dear friend Ghan also stayed with us all day helping us with translating during our meetings with the neonatologist and brain surgeon. Bethany and Libby have been so helpful in so many ways too. Sherry Palsrok is also here as a support which has meant a lot to us. I could keep going and mentioning those in this community who have been so thoughtful during this time but my list would get too long for tonight.

We want to thank so many of you who spent time in prayer for Olive this morning. We continue to ask Jesus to touch her little body...to fight against infection, and to protect her brain despite these complications. We also have been thankful for the good signs we are seeing with her respiratory system and digestive system. We continue to have hope for this little one...

Much love,

Lynette

New prayer requests and an update...

Dear friends and family,

We continue to be overwhelmed by the number of people praying for Olive and us during this time. I'm not sure if I have ever sensed Christ's body around the world coming together to pray for someone. Daily we are overwhelmed to tears while reading e-mails, prayers, poems, and words of encouragement from close friends and even strangers. We have churches praying for Olive all over the US, Canada, Nepal, Akha villages here in Thailand, the underground church in Vietnam, churches in Korea, churches on the Navajo reservation in New Mexico, England...and the list continues. Friends of mine who haven't prayed in months or years have been praying for her numerous times a day.

The week has been the biggest emotional rollarcoaster we have ever experienced. At the beginning of the week we were talking with the doctors about letting her go, for fear of her little body suffering so much...and then we saw answers to prayers and her condition improving little by little each day. She had every complication in the book, and yet her condition continues to stabilize. She is continuing to respond well to the colostrum, and today the doctor increased her intake to 1 cc/6 times a day. She had another stool today which is evidence that her little digestive system is working well. Her platelet count is normal, as well as her hematocrit and hemoglobin. Her bilirubin levels continue to drop. She has retained the ability to blink and close her eyes as she sleeps. Today they had her on room air for most of the day (21% oxygen)...and receiving 25% for part of the day, and her O2 blood saturation levels remained between 89-96% which is great news.

The current concern is that each day her head circumference continues to increase little by little. Tomorrow morning at 9:00 am (Sunday evening for those of you in the States) we have another ultrasound on her brain to assess the current state of swelling. How I understand it is that with the bleeding she experienced in her brain, her little head is compensating for that increase in space and expanding to reduce the pressure. After the ultrasound in the morning we will sit down to have a meeting with the brain surgeon, neonatologist, and another specialist. We will then talk about the next step in planning for her treatment...if the hospital here is adequate to care for her or if we will need to transfer her to another hospital in Chiang Mai, Bangkok, or the States if she is stable enough.

We are feeling anxious about the ultrasound in the morning, and would ask your prayers for us. Pray against infection for Olive as she is transported to the ultrasound room. We are in a hospital overwhelmed by patients over flowing into the hallways where we walk through to get to the ultrasound room.

We have grown to really love and respect the nurses caring for Olive. They have been so attentive to her needs, and we have much trust in their wisdom in caring for her. We have also grown to trust the doctor caring for her.

Culturally here in Thailand children with disabilities are looked down upon. I remember volunteering at an orphanage outside of Bangkok eight years ago and watching monks come and visit the hundreds of mentally handicapped children and tell them, "If you do better in this life, your next life will be better." Earlier this week our doctor, Thai friend, and two nurses sat us down for a meeting and asked if we wanted to go ahead and give Olive platelets that she needed and a new antibiotic, or if we would like to withhold the treatment and "let her go." They all encouraged us to "let her go" and withhold the treatment and said she would have about a week before her little body would shut down. They told us that if she survives and is handicapped and possibly blind it would be unfair to her. We cried a lot during that meeting, prayed, and went with our hearts....to continue treatment and commit to caring for her...unless we come to a point where we feel her little body can't undergo any more aggressive treatment.

We go through our days asking for more miracles...more healing of damaged cells, and quality of life for this little one.

Love,

Lynette and Rusty

---This song has been on my mind all day..."You are Still Holy" by Kari Jobe

"Holy, You are still holy even when the darkness surrounds my life

Sovereign, You are still sovereign even when confusion has blinded my eyes

And Lord I don't deserve Your kind affection

When my unbelief has kept me from Your touch

I want my life to be a pure reflection of Your love

And so I come into your chambers and I dance at your feet Lord

You are my Savior and I'm at Your mercy

All that has been in my life up till now belongs to You

You are still holy.

Holy, You are still holy even when I don't understand your ways

Sovereign, you are still sovereign even when my circumstances don't change

And Lord I don't deserve Your kind affection

When my unbelief has kept me from Your touch

I want my life to be a pure devotion to You.

Giving Olive Colostrum...

I am getting ready to crawl into bed but just wanted to leave a quick update from the day.

Olive still had bowel sounds this morning, and another stool so the doctor decided to start giving her colostrum (1 cc four times/day). So far she is digesting it and having no residual before each feeding. Her heart rate and blood oxygen levels stayed in the normal range and she was only on about 30-35% oxygen.

We are going to bed tonight with grateful hearts. Thank-you for all of your prayers, and so many words of encouragement.

Tonight one of my Thai friends who came to visit from Chiang Mai (Ichaya) is staying at the hospital with Olive for the night shift. Yet another thing to be thankful for.

Love to all of you!!!!

A note to Olive from me today...

Oh my little Olive...you are so precious to me. Your little toes to your chin-and those tiny little fingernails. Every part of you was perfectly formed. I am heartbroken to not have you inside of me where you belong right now...getting your nourishment from my body rather than from this IV hanging next to your little isolette.

I can't stop thinking about you when I am near you or away. I pray each day that Jesus would be the hands holding you close when I'm unable to. Today I've been feeling sick so I'm scared to get close to you, but everything in me wants to be holding you close to me and singing to you. Olive there are so many people praying for you around the world. So many people bringing requests to the FAther that your little body would continue to be renewed and restored. I am praying for a release of pressure on your little brain, for the swelling to decrease, and for the damaged cells and blood vessels to be made new and healthy. I've also been praying that your precious little eyelids would be able to close--and today they did!!! You were opening and closing your little eyes intentionally. The nurses heard bowel sounds over the last two shifts and I was told this morning that you had a stool. I almost jumped on the doctor when she told me because I was so excited. The doctor says that when you stop having gastric contents come out of your ng tube that they can give you some colostrum that I have frozen. Today you only had a little come out this morning... I am hoping and longing for the day when I can cuddle with you in my own bed...without all of these tubes coming out of you...and give you the milk my body has been making for you. I am dreaming of the day when I will be able to hear your little lungs breathing on their own...to hear the sound of your little cry. Grandma and Grandpa Miller are here now and have already fallen in love with you. Grandma has even been trying to give you little foot treatments which we are not surprised about. :>) Bethany, Libby, Jan, Janya, Sherry, Grandma, Grandpa, Daddy and I have been taking turns sitting next to you so that you don't feel alone...and so that your mother can rest knowing someone will call me if you are having any problems. The nurses here are taking such good care of you. I told them your name yesterday and they told me that they call you "Lucy." I laughed when I heard that, but still think its pretty cute. You are my little love, my little Olive Hope and I hope you can sense how loved you are. Bethany gave me these verses yesterday that we taped onto your bed and I have been reading them over and over. "I will lie down and sleep in peace, for you alone, O LORD, make [Olive] dwell in safety." Psalm 4:8 "...He who watches over you will not slumber; indeed He who watches over [Olive] will neither slumber nor sleep." Psalm 3:4